A three year old girl is suffering from a severe condition that causes her skin to start at the slightest contact. Any friction also causes Lily Mackey’s skin to blister, according to a Daily Mail report.
This leaves her with open wounds that puts her at risk for fatal infections. Doctors first noticed it when she was barely two days old and spotted blisters in her mouth. He is currently receiving a new treatment, which “dampens his immune system,” the report says.
The little boy from Ohio (USA) has been diagnosed with recessive dystrophic bullous epidermolysis (RDEB). It is also known as “butterfly skin”.
What is epidermolysis bullosa (EB)? The report states that it is a term used to describe a group of rare skin disorders that are inherited and makes the skin fragile.
One in 50,000 people are affected by EB worldwide. While there is no cure, there is treatment to help relive simple infections and treat. The recessive dystrophic, which has Lily, is among the most severe forms.
To prevent Lily from becoming infected, her parents have to wrap her whole body with bandages. Her mother Faith told the Daily Mail that she had nicknamed her girl a real-life “mummy.” They have also covered all their carpets and floors in the house with memory foam. Lily also requires 2,500 calories a day to prevent malnutrition and heal the damage her body has to endure.
